What you need to know about joining

Flip the nine cards below to learn more about KP Research Bank — and how your participation can help.

 

Benefits of
Joining

You could be helping people and communities in the future. Your participation in this program could help researchers understand health and disease, and discover new treatments or cures.

Watch video about why you should join (02:32)

 

Data is
secure

Your personal information (name, birth date, and more) is removed and replaced with a number. This de-identified data is securely stored within KP, and may be submitted to secure public research databases.

Watch video about de-identified data (01:45)

 

Health information
is used for research

To make discoveries about health, researchers use many pieces of health information, including medical record, survey, and genetic information. All research projects must be approved by a review committee.

Watch a video to learn more about research (01:51)

 

Complete a brief
health survey

Joining means taking a 20-minute health survey that asks about your past and current health. You can skip any questions you do not want to answer. The information is used for research.

 

Share past and
future medical
record data

Joining means agreeing to share your past and future medical record data for research only. Your personal information is removed from your medical record data and replaced with a number to protect your identity and privacy.

 

This is not
medical care

You will not get personal results back. Results will not be given to your doctor, put in your medical record, or used to help make decisions about your current health care.

 

You can leave the
program anytime

Your information may be used for research now and in the future. You can leave the program at any time.

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