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Sarah Madrid, Scientific Lead for the KPRB’s National Community Engagement and Outreach, is a cultural anthropologist with a BA from the University of Vermont and an MA from the Johns Hopkins University. Prior to joining Kaiser Permanente Colorado in 2003, Ms. Madrid worked for the United Methodist Committee on Relief and the US Peace Corps. Her research interests evolved from global health and development to patient engagement in research. She has been active in the latter field since 2012, when she led a team at KPCO’s Institute for Health Research in the development of the Member Engagement in Research Toolkit, which provides guidance on patient engagement practices and resources for IHR research teams. She founded the Health Care Systems Research Network’s (HCSRN) Patient Engagement in Research Scientific Interest Group (PER SIG) in 2013, and continues to lead that group as a co-chair. Under Ms. Madrid’s leadership the PER SIG created the Patient Engagement in Research Workbook, a “user’s manual” for researchers engaging patients, now in wide distribution through the HCSRN. Under the auspices of the PER SIG, she led teams in the development of two engagement methods workshops, including one that focused exclusively on identifying core outcomes of engagement in research, and methods for assessing the impacts of those outcomes. Ms. Madrid also conceived of and developed the infrastructure for the Colorado Patient Partners in Research (CoPPiR) network, a web-based system for connecting patient partners with researchers seeking to engage partners on their research teams. Funded by PCORI, CoPPiR is a partnership with Denver Health, the safety net health facility in Denver, and is under consideration by the HCSRN as a model of a potential HCSRN-wide patient partner network.

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